Tubidy
    Intro to Patient Registries

    Intro to Patient Registries

    02:09 |
    Download MP3

    Related Videos

    What is Beacon for Rare Diseases? 2:18

    What is Beacon for Rare Diseases?

    What is the value of patient groups? 2:06

    What is the value of patient groups?

    Intro to Raising Awareness Among Healthcare Professionals 2:07

    Intro to Raising Awareness Among Healthcare Professionals

    #RareShowcase23 Addassa Follett - Empowering lives: the Sickle Cell Society's Impact 14:30

    #RareShowcase23 Addassa Follett - Empowering lives: the Sickle Cell Society's Impact

    Intro to Patient Registries 2:09

    Intro to Patient Registries

    #RareShowcase23 Prof. Heinz Jungbluth - Rare disease research: the Paediatric Neurology perspective 18:56

    #RareShowcase23 Prof. Heinz Jungbluth - Rare disease research: the Paediatric Neurology perspective

    Introduction to Health Economics 2:07

    Introduction to Health Economics

    #RareShowcase23 Lightning Talk Esme Down - A medical student with rare diseases 4:46

    #RareShowcase23 Lightning Talk Esme Down - A medical student with rare diseases

    The London Rare Disease Showcase 2023 2:55

    The London Rare Disease Showcase 2023

    Introduction to 'Supporting nutritional management' 1:16

    Introduction to 'Supporting nutritional management'

    #RareShowcase23 Lightning Talk Lara Bloom - How project ECHO can help rare diseases 5:38

    #RareShowcase23 Lightning Talk Lara Bloom - How project ECHO can help rare diseases

    What is Findacure 1:45

    What is Findacure

    Findacure is becoming... 1:07

    Findacure is becoming...

    How To Identify Rare Disease Patients - Introduction 7:22

    How To Identify Rare Disease Patients - Introduction

    #RareShowcase23 Melita Irving, Guy's and St Thomas' - Trials and tribulations in rare diseases 17:05

    #RareShowcase23 Melita Irving, Guy's and St Thomas' - Trials and tribulations in rare diseases

    Why care about rare diseases? 1:13

    Why care about rare diseases?

    How Rare Disease Patient Groups Can Work With Researchers - Introduction 4:44

    How Rare Disease Patient Groups Can Work With Researchers - Introduction

    #RareShowcase23 Lightning Talk Loren Cameron - Inequality and diversity in clinical research 5:43

    #RareShowcase23 Lightning Talk Loren Cameron - Inequality and diversity in clinical research

    #RareShowcase23 Lightning Talk Dr Will Evans - Stratifying patients for rare disease identification 5:15

    #RareShowcase23 Lightning Talk Dr Will Evans - Stratifying patients for rare disease identification

    #RareShowcase23 Catriona Crombie - Challenges to translating rare disease research into impact 10:34

    #RareShowcase23 Catriona Crombie - Challenges to translating rare disease research into impact